University of Oklahoma Health Sciences Center

University of Oklahoma NF Clinic
Phone: 405-271-4211 or 405-271-8685
Location: OU Children's Physicians Building, 1200 Children's Avenue, Suite 5100, Oklahoma City, OK 73104
Website: University of Oklahoma Health Sciences Center

Physicians: Clinic Director: Danielle DeMarzo, MD; Clinic Co-Director: Rene Y. McNall-Knapp, MD
Specialty: NF1, NF2, Schwannamatosis
Facility Type: Multi-Disciplinary, Adults, Children

Cleveland Clinic

Neurofibromatosis Center
Phone: 216-636-5860 or 216-445-8179
Location: 9500 Euclid Avenue, Cleveland, OH 44195
Website: Cleveland Clinic

Physicians: Clinic Director: Gary Hsich, MD; Clinic Coordinator: Kristin Hackeman, BSN, RN, CPEN
Specialty: NF1, NF2
Facility Type: Multi-Disciplinary, Adults, Children

The Johns Hopkins Hospital

Comprehensive Neurofibromatosis Center
Phone: 410-502-6732
Location: Johns Hopkins Outpatient Center, 601 N. Caroline St, 5th floor, Baltimore, MD 21287 Additional Location: Johns Hopkins Greenspring Station, Pavilion II 10753 Falls Road, Suite 115, Lutherville, MD 21093
Website: The Johns Hopkins Hospital

Physicians: Jaishri Blakeley, MD; Allan Belzberg, MD; Carlos Romo, MD; Stephanie Morris, MD; Shannon Langmead, NP
Specialty: NF1, NF2, Schwannamatosis
Facility Type: Multi-Disciplinary, Adults, Children

UT Southwestern/Children’s Health Dallas

Harold C. Simmons Comprehensive Cancer Center
Phone: 214-456-2382 (Pediatrics) or 214-645-8800 (Adults)
Location: 1935 Medical District Drive, Dallas, TX 75235
Website: UT Southwestern/Children’s Health Dallas

Physicians: Laura Klesse, MD, PhD (children) and Justin Jordan, M.D., M.P.H. (adults); Clinic Coordinator: Alexis Kennedy, PNP
Specialty: NF1, NF2, Schwannamatosis
Facility Type: Multi-Disciplinary, Children, Adults

The Neurofibromatosis Program at UF Health Jacksonville

Pediatric Genetics-UF Health Pediatric Multispecialty Center – Prudential Drive
Phone: 904-633-0920
Location: 841 Prudential Drive, Suite 1900, Jacksonville, FL 32207
Website: The Neurofibromatosis Program at UF Health Jacksonville

Physicians: Pamela L. Trapane, M.D., Chief, Division of Pediatric Genetics
Specialty: NF1, NF2, Schwannamatosis
Facility Type: Children, Adults

Rutgers New Jersey Medical School

The Neurofibromatosis Center of New Jersey
Phone: 973-972-9106
Location: 140 Bergen Street; Level G, Newark, NJ 07103
Website: Rutgers New Jersey Medical School

Physicians: Caroline Hayes-Rosen, MD (Pediatarics); Clinic Coordinator: Christina Kresge, MS, CGC
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Adults, Children

Advent Health Medical Group Neurofibromatosis Clinic

Advent Health Medical Group Pediatric Neurofibromatosis Clinic
Phone: 407-303-2080 Fax: 407-303-2085 or 407-303-2770 (Adult)
Location: 2501 North Orange Avenue Suite # 589, Orlando, FL 32804
Website: Advent Health Medical Group Neurofibromatosis Clinic

Physicians: Advent Health Medical Group Pediatric Neurofibromatosis Clinic - Chenue Abongwa, MD, NF Medical and Clinical Direction, Pediatric Oncology/Hematology; Christine Goodwin, BSN, RN Clinic Coordinator; Stephanie Jerome, MD, Neuropsychology; Julia Henry, MD, Neurology; Konda Reddy, MD, Endocrinology; Maureen Maciel, MD, Orthopedics * * * * * * * * * * * * * * * * * * * * * * * * * * * * * Adult Neurology & Oncology; Advent Health Medical Group Neuro-Oncology at Orlando - Location: 2501 North Orange Avenue Suite # 286 Orlando FL 32804 Phone: 407-303-2270 Physicians: Ivo Tremont, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Multi-Disciplinary, Adults, Children

Ann & Robert H. Lurie Children's Hospital

Neurofibromatosis Program
Phone: 312-227-6120 or 312-227-6769
Location: 467 West Deming Place Suite 900 Chicago, IL 60614
Website: Ann & Robert H. Lurie Children's Hospital

Physicians: Dr. Miriam Bornhorst, head of the Neurofibromatosis (NF) oncology program; Robert Listernick, MD, Pediatrician; Joel Charrow MD, Geneticist; Genetic Counselor and Clinic Coordinator: Allison Goetsch, MS, CGC
Specialty: NF1, NF2
Facility Type: Multi-Disciplinary, Children

District of Columbia - Children's National Health System

The Gilbert Family Neurofibromatosis Institute
Phone: 202-476-3611 or 202-476-2120
Location: 111 Michigan Avenue, NW Washington, DC 20010
Website: District of Columbia - Children's National Health System

Physicians: Roger Packer, MD, Director; Clinic Coordinator: Jennifer Ramos-Blanco (202-476-5181)
Specialty: NF1, NF2, Schwannamatosis
Facility Type: Multi-Disciplinary, NF Consortium, Adults, Children

Randall Children’s Hospital at Legacy Emanuel

Neurofibromatosis Clinic
Phone: 503-944-5970
Location: 501 N Graham Street Suite 330B, Portland, OR 97227
Website: Randall Children’s Hospital at Legacy Emanuel

Physicians: Drea Peterson, MD, Clinical Geneticist, Neurofibromatosis Clinic Director; Clinical Coordinator: Leslie Granger, MS, CGC (Adults with NF are seen in Genetics with triage to additional sub-specialists based on individual patient needs.)
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Children, Adults

Columbia University Irving Medical Center

The ColumbiaDoctors Neurofibromatosis (NF) Program
Phone: 212-342-3587
Location: 180 Fort Washington Avenue, 5th Floor, New York, NY 10032
Website: Columbia University Irving Medical Center

Physicians: Gurcharanjeet Kaur, MD, Director of NF Program; Clinic Coordinator: Kaleah Miller
Specialty: NF1, NF2, Schwannamatosis
Facility Type: Adults, Children

Stanford Health Center

Stanford Neuroscience Health Center
Phone: 650-723-6469
Location: 213 Quarry Road Palo Alto, CA 94304
Website: Stanford Health Center

Physicians: Jacinda Sampson, Neurogeneticist; Thomas J. Wilson, MD, MPH, FAANS, Co-Director, Center for Peripheral Nerve Surgery
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Multi-Disciplinary, Adult

Stanford/Lucile Packard Children's Hospital

RASopathy/Neurofibromatosis Genetic Clinic
Phone: (650) 723-6858, press 2 for appointments or press 3 to speak with genetic counselor
Location: 730 Welch Road, Suite 317, Palo Alto, CA 94304
Website: Stanford/Lucile Packard Children's Hospital

Physicians: Cynthia Campen, MD; David A. Stevenson, MD; Thomas J. Wilson, MD, MPH, FAANS, Co-Director, Center for Peripheral Nerve Surgery; Ellyn Farrelly, Genetic Counseling Supervisor
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Multi-Disciplinary, Children

Mayo Clinic Hospital - Phoenix

Clinical Genomics/Neurology
Phone: 480-301-1735
Location: 5881 E. Mayo Boulevard, Phoenix, AZ 85054
Website: Mayo Clinic Hospital - Phoenix

Physicians: Maciej Mrugala, MD, PhD, Neuro-Oncology; Dr. Mayo A. Osundiji, M.B.B.S., Ph.D., Genetics; Dr. Alyx. B. Porter, M.D., Neuro-oncology; Dr. Shannon P. Fortin Ensign, M.D., Ph.D., Oncology
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Multi-Disciplinary, Adults, Children

UH Rainbow Babies and Children's Hospital

Multidisciplinary Neurocutaneous Syndromes Clinic
Phone: 216-844-1443 or 216-844-3691
Location: 11100 Euclid Ave, Cleveland, OH 44106
Website: UH Rainbow Babies and Children's Hospital

Physicians: Clinic Director: Duncan Stearns, MD; Clinic Co-Director: Breanne Roche, DNP, APRN, CPNP-PC, CPHON; Clinic Coordinator(s): Kelly Laschinger, PNP and Ashley Rowe, MA
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Children

Children’s Mercy Hospital

Comprehensive Neurofibromatosis Specialty Clinic
Phone: 816-302-9005
Location: 2401 Gillham Rd Kansas City, MO 64108
Website: Children’s Mercy Hospital

Physicians: Clinical Directors: Keely Fitzgerald, DO and Dihong Zhou, MD; Clinic Coordinator: Beth Shepard, BSN, RN, RNC-NIC, CPN. Clinic sees patients until the age of 21-22 years. Patients are then transitioned to UMKC/KUMC.
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Children, Adults

University of Alabama at Birmingham

Department of Genetics Birmingham , AL
Phone: 205-934-4983
Location:
Website: University of Alabama at Birmingham

Physicians: Bruce R. Korf, MD, PhD
Specialty: NF1, NF2, Schwannomatosis, Adults, Children
Facility Type: Multi-Disciplinary, NF Consortium

Phoenix Children's Hospital

Neurofibromatosis Program
Phone: 602-933-0063
Location: 1919 E Thomas Rd, Phoenix, AZ 85016
Website: Phoenix Children's Hospital

Physicians: Neil R. Friedman, MBChB/ Neurology; Ross Mangum, MD/ Hematology & Oncology; Clinic Coordinator: Nicole Del Col * * * * * * * * * * Phoenix Children’s Neurofibromatosis Clinic - Living with NF can be challenging, but at Phoenix Children’s Neurofibromatosis Clinic we provide comprehensive patient-centered care and compassionate support. We understand that each patient's journey with NF is unique, which is why we take a holistic approach to care, bringing together a team of specialists to address every aspect of the condition. We partner with our patients to empower them to take an active role in managing their health and well-being and prioritize open communication. We partner with our patients to empower them to take an active role in managing their health and well-being and prioritize open communication. Our multidisciplinary team of world-class specialists includes neurologists, oncologists, ophthalmologists, genetic counselors, dermatologists, and other experts who work collaboratively to provide personalized treatment plans. We are dedicated to advancing the field of NF research, offering cutting-edge treatments, and supporting patients every step of the way. Together, we can build a brighter future for NF patients and their families.
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Children

Washington University School of Medicine in St. Louis

Washington University Neurofibromatosis (NF) Center
Phone: 314-454-6120
Location: One Children's Place, St. Louis, MO 63110
Website: Washington University School of Medicine in St. Louis

Physicians: Center Director: David Gutmann, MD, PhD; Stephanie Morris, MD; Clinic Coordinator: Erika Ramirez, BSN, RN (Adult NF Care - for an appointment email: NFClinic@wustl.edu)
Specialty: NF1, NF2, Schwannamatosis
Facility Type: Multi-Disciplinary, NF Consortium, Adults, Children

Vanderbilt University Medical Center/Vanderbilt-Ingram Cancer Center

VICC Neurofibromatosis Clinic
Phone: 615-936-8422 or 615-343-0927
Location: Village at Vanderbilt, Suite 2500 1500 21st Avenue, Nashville, TN 37212
Website: Vanderbilt University Medical Center/Vanderbilt-Ingram Cancer Center

Physicians: Dr. Bryce Schuler, MD, PhD for Pediatrics and Genetics; Dr. Alex Mohler, M.D., Co-Director of VICC Neurofibromatosis Clinic for Adult Care and Assistant Professor, Department of Neurology’s Neuro-Oncology
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Children, Adults

University of Alabama at Birmingham

UAB Neurofibromatosis Clinic
Phone: 205-934-4983 or 866-822-4362
Location: 720 20th Street South, Kaul 230, Birmingham, AL 35233
Website: University of Alabama at Birmingham

Physicians: Bruce Korf, MD, PhD; Laura "Katie" Metrock, MD; Clinic Coordinator: Tammi Skelton, CRNP
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Multi-Disciplinary, NF Consortium, Children, Adults

University of Utah

Neurofibromatosis Clinic
Phone: 801-213-3599 (fax# for referrals: 801-587-7539)
Location: 81 N Mario Capecchi Dr, Salt Lake City, UT 84113
Website: University of Utah

Physicians: David H. Viskochil, MD, PhD and Vanina Taliercio, MD (Pediatrics); Dr. Juliann Allred (Adults) 801-585-7575; Genetics Clinic Coordinator - Ryan Bliatout/Clinic Nurse - Niki Cherico, RN
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Multi-Disciplinary, NF Consortium, Adults, Children

Akron Children’s Hospital

Comprehensive Neurofibromatosis Clinic
Phone: 330-543-8050
Location: 215 West Bowery Street, Level 4 Akron, OH 44308
Website: Akron Children’s Hospital

Physicians: Erin Wright, MD and Matthew Ginsberg, MD; Clinic Coordinator: Katie Wilhelm (The clinic sees new patients up to age 21)
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Children

UH Cleveland Medical Center

UH Seidman Cancer Center
Phone: 216-368-5693 - Oncology Administrator: Jessica Tripp
Location: 11100 Euclid Ave, Cleveland, OH 44106
Website: UH Cleveland Medical Center

Physicians: Herbert Newton, MD, FAAN, Medical Director, Neuro-Oncology Program and Brain Tumor Institute, UH CMC and Seidman Cancer Center
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Adults, Teens

NF Clinic Grand Rapids

Helen DeVos Children's Hospital Children's Outpatient Center
Phone: INFORMATION: 616-391-3699 FAX: 616-391-2505
Location: 330 Barclay NE, Suite 203 Grand Rapids, MI 49503
Website: NF Clinic Grand Rapids

Physicians: APPOINTMENTS: CHILDREN - Drs. Daniel Fain, Harlori Bains and Robin Cook - 616-267-2500 ADULTS - Dr. Bernie Eisenga - 616-391-2123; Dr. Cynthia Hingtgen - 616-267-7104 INFORMATION: 616-451-3699 FAX: 616-391-2505 Comprehensive NF1 diagnosis and management for both adults and children. NF2 diagnosis and monitoring for adults and teens. Schwannomatosis diagnosis and management.
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Adults, Children

University of Michigan Neurosurgery

A. Alfred Taubman Health Care Center
Phone: 734-936-7010 Fax: 734-936-9294
Location: 1500 E Medical Center Dr Floor 2 Reception G Ann Arbor, MI 48109
Website: University of Michigan Neurosurgery

Physicians: Dr. B. Gregory Thompson, neurosurgeon
Specialty: NF2
Facility Type: Adults, Children

University of Michigan - Adult Genetics

The Medical Genetics Clinic
Phone: 734-763-2532
Location: 24 Frank Lloyd Wright Dr. GPS: 4029 Ave Maria Drive Lobby C, Suite 1300, Ann Arbor, MI 48105
Website: University of Michigan - Adult Genetics

Physicians: SCHEDULING APPOINTMENTS: Please note that you need a referral from your doctor to schedule an appointment with our clinic. For more information, contact us at 734-647-8902.
Specialty: NF1, Schwannomatosis
Facility Type: Adults

Henry Ford Health System NF Clinic

Neurology and Neuro-Oncology
Phone: 313-916-2723 Fax: 313-916-7139
Location: Detroit, MI 48202
Website: Henry Ford Health System NF Clinic

Physicians: Tobias Walbert, MD, PhD, MPH, Neuro-Oncology
Specialty: NF1, Schwannomatosis
Facility Type: Adolescents, Adults

Corewell Health East - NF Clinic

McBrien Pediatric Neurology - Royal Oak
Phone: 248-551-3302
Location: 3555 W 13-Mile Rd Royal Oak, MI 48073
Website: Corewell Health East - NF Clinic

Physicians: Heather Little, DO, neurology; Kate Gowans, MD, hematology-oncology; Sue Burke, RN, BSN, CPN, Clinical Nurse Coordinator
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Children

Children's Hospital Colorado

Neurofibromatosis Program
Phone: Scheduling: 720-777-4532 Other Inquiries: 720-777-4532 or nfclinic@childrenscolorado.org
Location: 13123 East 16th Ave, Aurora, CO 80045
Website: Children's Hospital Colorado

Physicians: Jessica Win, MD; Aaina Kochhar, MD; and Jennifer Janusz PsyD, ABPP-Cn; Clinic Coordinator: Allison Hause, RN, BSN
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Children

NYU Langone Heath

Comprehensive NF Center
Phone: 212-263-9695
Location: 160 East 32nd Street, Level L3 Medical, 2nd Floor, New York, NY 10016
Website: NYU Langone Heath

Physicians: Director, Comprehensive NF Center: Kaleb Yohay, MD; Devorah Segal, MD, PhD; Pediatric Neurology, Neuro-Oncology, J. Thomas Roland MD, Neuro-Otology; John Golfinos MD; Neurosurgery. Clinic Coordinator: Carole Mitchell, MS, RN, 212-263-9695. If you are hearing impaired, please email carole.mitchell@nyulangone.org
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Major Academic Medical Center, Adults, Children

Cincinnati Children's Hospital Medical Center

The Cincinnati Neurofibromatosis Clinic
Phone: 513-636-8826 or 513-636-1861
Location: 3333 Burnet Ave, Division of Human Genetics, ML 4006 Cincinnati, OH 45229
Website: Cincinnati Children's Hospital Medical Center

Physicians: Center Director: Elizabeth Schorry, MD; Carlos Prada, MD; Clinic Coordinator Geri Kelly, BSN, RN, CPN
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Adults, Children

Children’s Hospital of Richmond at VCU

Pediatric NF Clinic at VCU
Phone: 804-628-5357
Location: 1000 East Broad Street, Richmond, VA 23219
Website: Children’s Hospital of Richmond at VCU

Physicians: Zhihong Joanne Wang, MD; Clinic Coordinator: Jill Farrar, RN, MSN
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatrics, Clinic sees NF patients until age 22 years.

John R. Oishei Children's Hospital

Neurofibromatosis Clinic
Phone: 716-323-6170
Location: 818 Ellicott Street, Buffalo, New York, 14263
Website: John R. Oishei Children's Hospital

Physicians: Matthew Barth, MD (Neuro-oncology) and Veetai Li, MD (Neurosurgery); Michelle Ventola, Program Specialist, MVentola@kaleidahealth.org
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Children to age of 21

Northwestern Memorial Hospital

Neuro-Oncology
Phone: 312-695-4360
Location: 675 N. St Clair St, Suite 20-100, Chicago, IL 60611
Website: Northwestern Memorial Hospital

Physicians: Karan Dixit, MD, Neuro Oncology/Neurology; Clinic Coordinator: Kellie Mora, RN - Clinic Schedule: (½ day on 3rd Tuesday of every month, etc.) 1/month.
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Multi-Disciplinary, Adult (age >18)

University of Washington Medical Center - Montlake

Alvord Brain Tumor Center - Neurology
Phone: 206-598-2282
Location: 1959 NE Pacific St., Pacific Tower, 7th Flr, EE728, Box 356182, Seattle, WA 98195
Website: University of Washington Medical Center - Montlake

Physicians: Lynne P. Taylor, M.D., F.A.A.N., F.A.N.A.; Jerome Graber, MD, MPH, FAAN; Manuel Ferreira, MD, PhD, Neurosurgery. (NOTE: treat patients 18 years of age and over only - Serves Washington, Wyoming, Alaska, Montana, and Idaho, as part of the WWAMI service region for University of Washington. This location offers televisits for Alaska and Hawaii patients.)
Specialty: NF1, NF2
Facility Type: Adults

Riley Children's Health - IU Health

Riley Child Neurology
Phone: 317-948-7450
Location: 575 Riley Hospital Dr, Indianapolis, IN 46202
Website: Riley Children's Health - IU Health

Physicians: Clinical Directors: Steven Rhodes MD, PhD and Laurence Walsh, MD; Lisa Smith, MD, Laurence Walsh, MD, and Fabio Nunes, MD are involved in seeing neurofibromatosis patients on a weekly basis; Clinic Coordinator: Lisa Langsford, RN, BSN
Specialty: NF1, NF2, Schwannamatosis
Facility Type: Multi-Disciplinary, Adults, Children

Vida Bela Plastic Surgery

Neurofibroma and Operative Plexiform Removal
Phone: 469-598-2400
Location: 3108 Midway Rd., Suite 102, Plano, TX 75093
Website: Vida Bela Plastic Surgery

Physicians: Chelsea Snider, MD, Director of Vida Bela Plastic Surgery | Plastic, Reconstructive, & Craniofacial Surgery | Fax: 469-598-2399 | Email: info@vidabelaplasticsurgery.com
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Children, Adults

Roswell Park Comprehensive Cancer Center

Adult Neurofibromatosis Clinic
Phone: 716-845-1508
Location: Elm & Carlton Streets Buffalo, NY 14263
Website: Roswell Park Comprehensive Cancer Center

Physicians: Director: Lindsay Lipinski, M.D.; Nurse Coordinator: Mary Rose Vater; Social Worker: Bethann Levin
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Adults

Memorial Sloan Kettering NF Program

Neurofibromatosis Clinic
Phone: 212-639-5948 (Pediatric Neuro-oncology Services); 212-639-6767 (Adult Neuro-oncology Services)
Location: 1275 York Avenue, New York, NY 10065
Website: Memorial Sloan Kettering NF Program

Physicians: Matthias A. Karajannis, MD, MS (Pediatric Neuro-oncology Services), Anna Piotrowski, MD (Adult Neuro-oncology Services)
Specialty: NF1, NF2, Schwannamatosis
Facility Type: Multi-Disciplinary, Adults, Children

Arkansas Children's Hospital

Neurofibromatosis Clinic
Phone: 501-364-1850
Location: 1 Children's Way, Little Rock, AR 72202
Website: Arkansas Children's Hospital

Physicians: Gregory Sharp, MD, Elizabeth Sellars, MD, (Medical Director) Kevin Bielamowicz, MD, Adrianne Parkey, MD; Aurielle Westfall (NF Clinic Nurse Coordinator)
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Children

UI Stead Family Children's Hospital

Neurofibromatosis Clinic
Phone: 800-777-8442, Scheduling: 319-356-2229
Location: 2400 Colloton Pavilion, 200 Hawkins Drive Iowa City, Iowa 52242
Website: UI Stead Family Children's Hospital

Physicians: Alpa Sidhu, MD, PhD, Clinical Geneticist and Karin Panzer, MS, CGC
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Adults, Children

Georgia Cancer Center/Children’s Hospital of Georgia

Georgia Neurofibromatosis Clinic
Phone: 706-446-5455
Location: Pediatric Neurology Clinic, 1446 Harper Street, Augusta, GA 30912
Website: Georgia Cancer Center/Children’s Hospital of Georgia

Physicians: Dr. John W. Henson, MD, Neuro-oncology, Genetics, Adult Neurology; Colleen McDonough, MD, Pediatric Oncology; Suzanne Strickland, MD, Pediatric Neurology, Pediatric Epilepsy; Clinic Coordinator: Heather Hendrix. Currently clinic schedule is as follows: First Tuesday afternoon of each month, although patients can be seen on other days according to need.
Specialty: NF1, NF2
Facility Type: Children, Adults, Multi-Disciplinary

Emory University/Children's Healthcare of Atlanta

Comprehensive Neurofibromatosis Clinic
Phone: 404-785-5437
Location: Center for Advanced Pediatrics, 1400 Tullie Road NE 4th Floor
Website: Emory University/Children's Healthcare of Atlanta

Physicians: David Scott Wolf, MD, PhD, Neurologist, Director of Comprehensive NF Clinic
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Children

Geisinger Medical Center - Neurosurgery

Neurosurgery
Phone: 570-271-6437
Location: 100 North Academy Avenue, Danville, PA 17822
Website: Geisinger Medical Center - Neurosurgery

Physicians: Anne Marie Morse, DO, Director of Pediatric Neurology; Clinic Coordinator: Brianna Porreca BSN, RN, Pediatric Neurosurgery Nurse Navigator - (Clinic Schedule: half day, monthly)
Specialty: NF1, NF2
Facility Type: Children, Adults, Multi-Disciplinary

Yale New Haven Hospital

Neurocutaneous Syndrome Clinic
Phone: 877-925-3637 (1-877-YALE MDS)
Location: 20 York Street, New Haven, CT 06520
Website: Yale New Haven Hospital

Physicians: Asher Marks, MD, Director of Pediatric Neuro-Oncology; Clinic Coordinator: Jamie Batson Phone: 1-877-925-3637 (1-877-YALE MDS) Fax: 203-737-7635
Specialty: NF1, NF2, Tuberous Sclerosis
Facility Type: Pediatrics to Young Adult; Multi-Disciplinary

Baylor College of Medicine

Neurofibroma and Operative Plexiform Removal Division of Adult Plastic Surgery, Department of Surgery
Phone: 713-798-6141
Location: 1977 Butler Blvd, Suite E6.100, Houston, Texas, 77030
Website: Baylor College of Medicine

Physicians: Sebastian Winocour, MD, MSc, FACS, Baylor College of Medicine, Division of Plastic Surgery
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Adults

Texas Children’s Hospital/Baylor College of Medicine

Neurofibromatosis Clinic
Phone: 832-822-4280
Location: 6701 Fannin, 16th Floor, Houston, TX 77030
Website: Texas Children’s Hospital/Baylor College of Medicine

Physicians: William Craigen, MD, PhD; Clinic Coordinator: Katie M. Chan, MS, CGC
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Children, Adults

Children’s Wisconsin

NF/RASopathy Center
Phone: 414-607-5280 or 414-266-3347 or 414-266-3352
Location: 9000 W. Wisconsin Avenue, MS716, Milwaukee, WI 53226
Website: Children’s Wisconsin

Physicians: Donald Basel, MD and Leah Lalor, MD/Dermatology; Clinic Coordinator: Lisa Koneazny, RN, BSN
Specialty: NF1, NF2, Schwannamatosis
Facility Type: Multi-Disciplinary, Children, Adults for initial consult

The Ohio State University Wexner Medical Center

NF2 Clinic - Hearing and Balance Program
Phone: 614-366-3931 (NF2); 614-293-4448 (NF1)
Location: The Ohio State Eye and Ear Institute; 915 Olentangy River Road, Suite 4000, Columbus, OH 43212
Website: The Ohio State University Wexner Medical Center

Physicians: (NF2) - Oliver Adunka, MD; Clinic Coordinator: Nina Holman; Scheduling and other inquiries: 614-366-3931 or Laura.Scott@osumc.edu * * * * * (NF1) - Neuro-oncology 614-293-4448 - Pierre Giglio, MD; Clement P. Pillainayagam, MD
Specialty: NF1, NF2
Facility Type: Adults, Children

UF Health Neuromedicine – Neuromedicine Hospital

Neurology and Neurosurgery
Phone: 352-294-5000
Location: 1505 SW Archer Road 1st floor, Gainesville, FL 32610
Website: UF Health Neuromedicine – Neuromedicine Hospital

Physicians: Hans H. Shuhaiber M.D. hshuhaiber@ufl.edu, Clinical Assistant Professor of Neurology, Adult Neurology, Adult Genetics
Specialty: NF1
Facility Type: Multi-disciplinary, Children, Adults

Miller Children’s and Women’s Hospital

Genetics Clinic
Phone: 562-728-5035
Location: Cherese Mari Laulhere Children's Village at Miller Children’s and Women’s Hospital, 2701 Atlantic Ave, Long Beach, CA 90806
Website: Miller Children’s and Women’s Hospital

Physicians: Natalie Gallant, MD; Angela Myers, MD; Leslie Raffel, MD; Katie Singh, MPH, MS, LCGC; Meghan Gillespie, MS, LCGC
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Multi-Disciplinary; Children, Adult (case by case basis)

UC Irvine Medical Center

Adult Genetics Clinic
Phone: 714-456-7002
Location: Pavilion 1, UCI Medical Center, 101 The City Drive, Orange, CA 92868
Website: UC Irvine Medical Center

Physicians: Angela Myers, MD; June-Anne Gold, MD; Katherine Hall, MS, LCGC; Meghan Gillespie, MS, LCGC
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Multi-Disciplinary; Adults

Children's Hospital Orange County

CHOC Children’s Neurofibromatosis Program
Phone: 714-288-3500, option #1; 888-770-2462-ask for Specialties Clinics
Location: 1201 W. La Veta, Orange, CA 92868
Website: Children's Hospital Orange County

Physicians: Neda Zadeh,MD, Genetics; Maureen Bocian, MD; Virginia Kimonis, MD; Katherine Hall, MS, LCGC; Touran Zadeh, MD, Genetics; Afshin Aminian, MD, Orthopaedics; Lily Tran, MD, Neurology; Sharief Taraman, MD, Neurology; Carol Lin, MD, Hematology/Oncology; Michael Muhonen, MD, Neurosurgery; Joffre Olaya, MD, Neurosurgery; William Loudon, MD, Neurosurgery
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Multi-Disciplinary; Children, Adult (case by case basis)

University of Chicago Medicine

Neurofibromatosis Program
Phone: 773-834-1927
Location: Chicago
Website: University of Chicago Medicine

Physicians: James Tonsgard, MD, Director, University of Chicago Ambulatory Program for Neurofibromatosis; Clinical Nurse - Deborah Ruckman, RN (773-834-1927)
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Adults, Children

UC Davis Health - MIND Institute

NF/Ras Pathway Clinic - "Ras Clinic"
Phone: 916-703-0317 Appointment Scheduling, Elizabeth Boyd
Location: 2825 50th Street Sacramento, CA 95817
Website: UC Davis Health - MIND Institute

Physicians: Suma Prabhu Shankar, M.D., Ph.D.; Colette DeFilippo, M.S., L.C.G.C. Genetic Counselor
Specialty: NF1, NF2, Schwannomas
Facility Type: Multi-Disciplinary, Adults, Children

UCSF Benioff Children’s Hospital

Child and Adolescent Neurology Clinic
Phone: 415-353-7596
Location: 1825 Fourth St., Fifth Floor, 5A, San Francisco, CA 94158
Website: UCSF Benioff Children’s Hospital

Physicians: Alyssa Reddy, MD, Pediatric neurologist; Line Jacques, MD, Peripheral nerve surgery (Adults)
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Multi-Disciplinary, Children, Adults

Oregon Health & Science University

Nerve Center
Phone: 503-494-4314
Location: 3303 S. Bond Avenue, Portland, Oregon 97239
Website: Oregon Health & Science University

Physicians: Kim J. Burchiel, M.D., F.A.C.S.
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Children, Adults

Oregon Health & Science University

Genetics and Birth Defects Clinic at Doernbecher
Phone: 503-494-8307
Location: 707 S.W. Gaines Street, Portland, Oregon 97239
Website: Oregon Health & Science University

Physicians: Kory Keller, M.S., C.G.C.
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Children

Sanford Health

Pediatric Neurosurgery
Phone: 605-312-8500
Location: 1210 W. 18th Street, Suite 100, Sioux Falls, SD 57104
Website: Sanford Health

Physicians: Eric Trumble, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Children, Adults

Le Bonheur Children's Hospital

Le Bonheur Outpatient Center - Genetics
Phone: 866-870-5570
Location: 51 N. Dunlap St., 4th Floor, Memphis, TN 38105
Website: Le Bonheur Children's Hospital

Physicians: Eniko K. Pivnick, MD, Geneticist; Andrei V. Alexandrov, MD, Chairman, Dept. of Neurology
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Children, Adults

Cook Children's Health Care System

Neurofibromatosis Clinic
Phone: 682-885-2500
Location: 1500 Cooper Street, Fort Worth, Texas 76104
Website: Cook Children's Health Care System

Physicians: Jeffery C. Mcglothlin, MD
Specialty: NF1, NF2
Facility Type: Children

The University of Texas MD Anderson Cancer Center Children’s Cancer Hospital

Pediatric Neurofibromatosis Clinic
Phone: 855-690-2446 or 888-609-1512
Location: 1515 Holcombe Blvd., Houston, TX 77030
Website: The University of Texas MD Anderson Cancer Center Children’s Cancer Hospital

Physicians: John Slopis, MD, MPH and Zsila Sadighi, MD; Clinic Coordinator: Rachel Bingham, APN
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Children, Adults

Children's Hospital of Pittsburgh of UPMC

Neurofibromatosis Clinic
Phone: 412-692-5520
Location: 4401 Penn Avenue, Pittsburgh, PA 15224
Website: Children's Hospital of Pittsburgh of UPMC

Physicians: Kathy Gardner, MD; Jenna Gaesser, MD; Clinic Coordinator: Beth Heuer, CRNP
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Adults, Children

Children's Hospital of Philadelphia

University of Pennsylvania Neurofibromatosis Clinic
Phone: 215-590-7012 (Children) or 215-662-4740 (Adults)
Location: 3501 Civic Center Blvd, Philadelphia, PA 19104
Website: Children's Hospital of Philadelphia

Physicians: Director, NF Program: Michael Fisher, MD; Medical Director, NF Pediatric Program Rachel Hachen, MD, MPH; Clinical Coordinator: Clinical Coordinator: Andrea Rennie, RN, BSN
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Adults, Children

Ascension Columbia St. Mary's Milwaukee

Van Dyke Cancer Center
Phone: 414-298-7250
Location: 2350 N Lake Dr. Ste G01 Csm Cancer Center-milwaukee, Milwaukee, WI 53211-4528
Website: Ascension Columbia St. Mary's Milwaukee

Physicians: Clinic Director: Hendrikus Krouwer, MD
Specialty: NF1, NF2, Schwannamatosis, Adults, Children
Facility Type:

University of Wisconsin/American Family Children's Hospital

Comprehensive Pediatric Neurocutaneous Disorders Clinic
Phone: 608-263-6420 "option 3"
Location: 1675 Highland Avenue, Madison, WI 53792
Website: University of Wisconsin/American Family Children's Hospital

Physicians: Diane Puccetti, MD; Clinic Coordinator: Kathleen Herfel, CPN
Specialty: NF1, NF2, Schwannamatosis
Facility Type: Children

Nationwide Children's Hospital

Neurofibromatosis Clinic
Phone: 614-722-3538
Location: 700 Children's Drive Columbus, OH 43205
Website: Nationwide Children's Hospital

Physicians: Murugu Manickam, MD; Clinical Coordinator: Emily Sites, MS, CGC
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Adults, Children

M Health - University of Minnesota Medical Center and Masonic Children's Hospital

University of Minnesota Neurofibromatosis Clinic
Phone: 612-365-8100
Location: 2450 Riverside Ave., Minneapolis, MN 55454
Website: M Health - University of Minnesota Medical Center and Masonic Children's Hospital

Physicians: Chris Moertel, MD; Kathy Sommer, MS, RN
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Adult, Children

New York University Division of Otology and Neurotology

Otology & Neurotology
Phone: 212-263-5565
Location: New York
Website: New York University Division of Otology and Neurotology

Physicians: Chairman of the Dept: J. Thomas Roland, Jr. FACS
Specialty: NF2
Facility Type: NF2 Major Medical Center

Golisano Children's Hospital at University of Rochester Medical Center

Neurology
Phone: Children (under 18 years of age) 585-275-2808; Adult: 585-341-7500
Location: 601 Elmwood Ave, Box 631, Rochester, NY 14642
Website: Golisano Children's Hospital at University of Rochester Medical Center

Physicians: Alex Paciorkowski, MD, Division Chief, Neurogeneticist; Clinic Coordinator: Carolyn Dickinson, PNP
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Adults, Children

University of North Carolina Hospitals

UNC Neurofibromatosis Clinic
Phone: 984-974-1401 or 919-966-8165
Location: 101 Manning Drive, Chapel Hill, NC 27517
Website: University of North Carolina Hospitals

Physicians: Robert S Greenwood, MD and Timothy Gershon, MD, PhD; Clinic Coordinator: Betty Allen, BSN
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Adults, Children

Duke University Medical Center

Duke Comprehensive Neurofibromatosis Clinic
Phone: 919-525-3395
Location: 2301 Erwin Road, Durham, NC 27710
Website: Duke University Medical Center

Physicians: Director: David Van Mater, MD, PhD; Co-Director: Kirsten Schroeder, MD, MPH; Clinic Coordinator: Monica Austin
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Multi-Disciplinary, Children, Adults

Children's Hospital at Montefiore

Neurofibromatosis Center at Montefiore
Phone: 718-920-4378 or 718-714-2342
Location: 3415 Bainbridge Ave, Bronx, NY 10467
Website: Children's Hospital at Montefiore

Physicians: Adam S. Levy, MD, Genetics; Marcela DelRio, MD, Nephrologist; Fatema Malbari, MD, Child Neurologist & Neuro-Oncologist; Linda Lightstone, Social Worker
Specialty: NF1, NF2
Facility Type: Children to age of 21

Wake Forest Baptist Health

Neurofibromatosis Multidisciplinary Clinic
Phone: 336-716-4101
Location: Medical Center Boulevard, Winston-Salem, NC 27157
Website: Wake Forest Baptist Health

Physicians: Tamison Jewett, MD Clinic Director; David Kram, MD, Co-Director; Roy Strowd, MD, Co-Director
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Multi-Disciplinary, Adults, Children

Weinberg Plastic Surgery


Phone: 917-492-4200
Location: New York
Website: Weinberg Plastic Surgery

Physicians: Hubert Weinberg, MD
Specialty: Electrodessication
Facility Type:

National Cancer Institute

Pediatric Oncology Branch
Phone: 240-760-6560
Location: Building 10, Room 1W-3750, Bethesda, MD 20892
Website: National Cancer Institute

Physicians: Brigitte C. Widemann, MD, Chief, Pediatric Oncology Branch
Specialty: NF1, NF2, Schwannamatosis
Facility Type: Multi-Disciplinary, Children

Massachusetts General Hospital

Neurofibromatosis Clinic
Phone: 617-724-7856
Location: 55 Fruit Street, Boston, MA. 02114
Website: Massachusetts General Hospital

Physicians: Scott Plotkin, MD, Neurosurgical Oncologist, Neurologist; Justin Jordan, MD, MPH; Ann Slater, RN
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Multi-Disciplinary, NF Consortium, Adults, Children

Boston Children's Hospital

Pediatric Multidisciplinary Neurofibromatosis Program
Phone: 617-355-6394 (NF1) and 617-355-6388 (NF2)
Location: 300 Longwood Ave, Boston, MA 02115
Website: Boston Children's Hospital

Physicians: David Miller, MD, PhD, Director, Neurofibromatosis Program; Nicole Ullrich, MD, PhD, Associate, Department of Neurology; Director, Neurologic Neuro-Oncology; Associate Director, Clinical Trials, Neurofibromatosis Program; Clinic Coordinator: Caroline McGowan, MS, Coordinator, Neurofibromatosis Program; Licensed Genetic Counselor, Division of Genetics and Genomics
Specialty: NF1, NF2
Facility Type: Multi-Disciplinary, NF Consortium, Children

Louisiana State University and Children's Hospital New Orleans

Children's Hospital Neurofibromatosis Clinic
Phone: 504-896-9254
Location:
Website: Louisiana State University and Children's Hospital New Orleans

Physicians: Regina M. Zambrano, MD, Genetics - Pediatric; Hannah Meddaugh, MGCS, CGC *** (All new patient referral requests must be sent by fax: 504-896-3997 or entered into Epic medical record system.) *** Other inquiries email: hannah.meddaugh@lcmchealth.org
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Adults, Children

Mayo Clinic

Department of Clinical Genomics - Neurofibromatosis Clinic
Phone: 507-284-8198 or 800-533-1564 referring physician line
Location: 200 First St. SW, Rochester, MN 55905
Website: Mayo Clinic

Physicians: Dusica Babovic-Vuksanovic, MD, FAAP, FACMG; Connie Kruger, RN and Laura Fisher, MS, CGC
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Adults, Children

Children's Hospitals and Clinics of Minnesota

Neurocutaneous Syndromes Clinic
Phone: 612-813-7240
Location: 2530 Chicago Ave South, Minneapolis, MN 55404
Website: Children's Hospitals and Clinics of Minnesota

Physicians: Marcelo Vargas, MD and Elizabeth Siqveland, APRN-CNP; Clinic Coordinator: Dinel Pon, MS, CGC
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Children

St. Joseph's Regional Medical Center

Neurofibromatosis Diagnostic and Treatment Center
Phone: 973-754-4503
Location: 703 Main Street, Paterson, NJ 07503
Website: St. Joseph's Regional Medical Center

Physicians: Directors: Punita Gupta, MD, FAAP, FACMG and Romana Kulikova, MD, FAAP; Clinic Coordinator: Lorien King, MS, LCGC
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Adults, Children

Tufts Medical Center

Genetics
Phone: 617-636-5454
Location: 860 Washington Street South Building, 2nd Floor, Boston, MA 02111
Website: Tufts Medical Center

Physicians: Dallas Reed, MD, Medical Geneticist, Obstetrics ~ 617-636-5454; John Gaitanis, MD, Chief Pediatric Neurology ~ 617-636-8100; Carl B. Heilman, MD, Neurosurgeon in Chief ~ 617-636-5860; Julian K. Wu, MD, Chief, Division of Neurosurgical Oncology ~ 617-636-4500; Nancy Pinnell, Genetic Counselor ~ 617-636-4540
Specialty: NF1, NF2, Schwannamatosis
Facility Type: Adults, Children

SSM Health Cardinal Glennon Children's Hospital

Neurofibromatosis Clinic
Phone: 314-577-5397
Location: 1465 South Grand Blvd, St. Louis, Missouri 63104
Website: SSM Health Cardinal Glennon Children's Hospital

Physicians: Amelia Kirby, MD (Director - Genetics); Ali Jamal, MD (Neurology); Thomas Geller, MD; Clinic Coordinator: Julie Engel, RN
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Children

Albany Medical Center

Neurofibromatosis Clinic and Brain Tumor Program
Phone: 518-262-5513
Location: 43 New Scotland Avenue, Albany, New York 12208
Website: Albany Medical Center

Physicians: Director: Lauren Weintraub, MD; NF Coordinator: Usha Sarecha Physicians: Dr. Matthew Murnane, Adult neurologist, 518-262-5226 Dr. Susan Weaver, Neuro-oncologist, 518-262-6696
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Adults, Children

Cedars-Sinai Medical Center

Department of Pediatrics
Phone: 310-423-9914, option 3 for new patients
Location: 8723 Alden Drive, SSB Suite 240
Website: Cedars-Sinai Medical Center

Physicians: Pedro A. Sanchez, MD, Director, Medical Genetics; Katie Grand - Genetic Counselor
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Multi-Disciplinary, Adults, Children

Seattle Children's Hospital

Neurology Clinic
Phone: 206-987-2016 or toll-free: 844-935-3467
Location: 4800 Sand Point Way NE, Seattle, WA 98105
Website: Seattle Children's Hospital

Physicians: Aimee Sato, MD, Neurology
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Children

University of Louisville Neurofibromatosis Clinic

Weisskopf Child Evaluation Center
Phone: 502-588-0888
Location: 411 E. Chestnut Street 2nd Level, Check-in Louisville, KY 40202
Website: University of Louisville Neurofibromatosis Clinic

Physicians: Clinic Director: Alexander Asamoah, MD, PhD; Clinic Coordinator: Kelly Jackson, MS, CGC
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Adults, Children

University of Kentucky

Kentucky Neuroscience Institute Neurofibromatosis Clinic
Phone: 859-323-5661 or 859-218-5011
Location: 740 S. Limestone First Floor, Wing C, Room B101, Lexington, KY 40536
Website: University of Kentucky

Physicians: Donita D. Lightner, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Adults, Children

McKay McKinnon, MD

Plastic & Reconstructive Surgery
Phone: 312-335-9566
Location: 680 N Lake Shore Dr. #1208, Chicago, IL 60611
Website: McKay McKinnon, MD

Physicians: McKay McKinnon, MD; Plastic & Reconstructive Surgery, Plexiforms
Specialty: NF1, NF2
Facility Type: Children, Adults

House Clinic

Neurofibromatosis Clinic
Phone: 213-353-7067 or 213-483-9930
Location: 2100 West 3rd Street, Los Angeles, CA 90057
Website: House Clinic

Physicians: William H. Slattery, III, MD; David Brackmann, MD; Gregory p. Lekovic, MD, PhD; Gautam U. Mehta, M.D.
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Children, Adults, Outpatient clinic and surgery

Children's Hospital Los Angeles

Comprehensive Neurofibromatosis Clinic
Phone: 323-361-2471 or 323-361-2178
Location: 4650 Sunset Blvd MS #82, Los Angeles, FL. 90027
Website: Children's Hospital Los Angeles

Physicians: Patients can be referred to either the Division of Neurology or Division of Medical Genetics. Tena Rosser, MD Associate Professor of Clinical Neurology, USC Keck School of Medicine; Linda Randolph, MD, FAAP, FACMG Head of the Division of Medical Genetics at Children's Hospital Los Angeles.
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Multi-Disciplinary, NF Consortium, Children

Moffitt Cancer Center

Moffitt Genetic Neuro-oncology Clinic
Phone: 813-745-3555 or 813-745-3200
Location: 12902 USF Magnolia Drive, Tampa, FL 33612
Website: Moffitt Cancer Center

Physicians: Xia Wang, MD, PhD; Sepideh Mokhtari, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Adults

Johns Hopkins All Children's Hospital

Hematology/Oncology
Phone: 727-767-3675
Location: 601 5th Street South, Suite 302, St. Petersburg, FL 33701
Website: Johns Hopkins All Children's Hospital

Physicians: Clinic Director: Stacie Stapleton, MD; Melissa Crenshaw, MD, Genetics (727-767-8491); Clinic Coordinator: Sonja Steinbrueck, RN/sstein21@jhmi.edu
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Adults, Children

Nicklaus Children's Hospital

Neurofibromatosis Center
Phone: 305-663-8595
Location: 3100 SW 62 Avenue #301, Miami, FL 33155
Website: Nicklaus Children's Hospital

Physicians: Mislen S Bauer, MD, Director, Neurofibromatosis Program
Specialty: NF1, NF2, Schwannamatosis
Facility Type: Multi-Disciplinary, Adults, Children

Nemours/Alfred I. duPont Hospital for Children

Nemours RASopathy & Neurofibromatosis Clinic
Phone: 302-651-5916 or 302-651-5476
Location: 1600 Rockland Road, Wilmington, DE 19803
Website: Nemours/Alfred I. duPont Hospital for Children

Physicians: Karen Gripp, MD and Gurcharanjeet Kaur, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Children

Connecticut Children's Medical Center

Neurology
Phone: 860-837-7500
Location: 505 Farmington Avenue, 2nd Floor, Farmington, CT. 06032
Website: Connecticut Children's Medical Center

Physicians: Francis DiMario, MD; Clinic Coordinator: Alyssa White, RN, BSN
Specialty: NF1, NF2
Facility Type: Pediatrics up to 18

University of California, Los Angeles - UCLA

UCLA Multidisciplinary NF Clinic
Phone: 310-825-5111 or 310-825-5321
Location: 300 Stein Plaza, Ste. 420, Los Angeles, CA 90095
Website: University of California, Los Angeles - UCLA

Physicians: Phioanh (Leia) Nghiemphu, MD, Director; Marco Giovannini, MD, PhD, Scientific Director
Specialty: NF2, Schwannomatoisis
Facility Type: Multi-Disciplinary, Adults, Children

Panossian Plastic Surgery

Plastic Surgery
Phone: 800-958-3778
Location: 39 Congress St., Suite 402 Pasadena, CA 91105
Website: Panossian Plastic Surgery

Physicians: Andre Panossian, MD
Specialty: NF1, NF2
Facility Type: Plastic Surgery, Children, Adults

City of Hope


Phone: (800) 826-HOPE
Location: 1500 E. Duarte Road Duarte, CA 91010-3000
Website: City of Hope

Physicians: Susan Shehayeb, M.S., L.C.G.C., Genetic Counselor for NF and cancer risk assessment and counseling; Thomas P. Slavin, M.D., Clinical Geneticist (Follows adults and children with NF1); Neal Prakash, M.D., Neurologist (Follows NF patients); Wai-Yee Li, M.D., Ph. D., Plastic Surgeon; Warren Chow, M.D., Oncologist; Vijay Trisal, M.D., Surgical Oncologist
Specialty:
Facility Type: Adults, Children

Arizona Pediatric Neurology & Neurogenetics Associates

Neurology
Phone: 602-687-8555
Location: 3330 N 2nd St., Ste 402, Phoenix, AZ 85012
Website: Arizona Pediatric Neurology & Neurogenetics Associates

Physicians: Vinodh Narayanan, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Adults, Children

University of Michigan Pediatric Genetics

C.S. Mott Children's Hospital - Pediatric Genetics
Phone: 734-764-0579 Fax: 734-763-6561
Location: 1540 E. Hospital Dr., Level 6, Reception C, Ann Arbor, MI 48109-5718
Website: University of Michigan Pediatric Genetics

Physicians: Jeffrey Innis, MD; Catherine Keegan, MD
Specialty: NF1
Facility Type: Children